Lynch syndrome is a genetic condition that increases a person's risk for certain cancers. It is the most common inherited cause of colorectal and endometrial cancers. Many individuals with a Lynch mutation develop related cancers at very early ages, much younger than the general population. Screening should begin earlier for patients with a known Lynch mutation. 

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2021 Living with lynch

participant application

September 9-12, 2021 Columbus, Ohio

We are optimistic that the in-person small group event will take place September 9-12, 2021 in Columbus, Ohio, hosted by AliveAndKickn, The Colon Cancer Coalition and Heather Hampel, MS, LGC, of The Ohio State Comprehensive Cancer Center.


Lynch syndrome patients are invited to apply, even if you have applied in the past.  After a thorough review process, we will be selecting a diverse group of about a dozen individuals to join us in Columbus.  The application will be open through the end of May and the selection process will go through the end of June. 


Living with Lynch 2020

virtual patient workshop

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In November 2019, 13 Lynch-positive patients, seven women and six men, eight cancer survivors and five previvors, met for the first time in Houston at a weekend sponsored by Promega Corporation. While together they had the opportunity to talk with experts in the field of genetic counseling, oncology, research, treatment, and immunotherapy. They were also given the opportunity to connect with each other and bond over shared experiences. 

Living with Lynch

2020 Advocates